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Pake Update

Hi Everyone,

We wanted to check in and share our latest update. Pake is doing really well! The major side effect of the radiation treatments is being tired. He's pushing through it and staying active, as his doctors have shared that this is really important, especially after the treatments end and his body works to heal and recover. Once treatments are finished, we'll be back for a scan in October to determine the results.

He does have other tumors that will need to be treated. The next one we are watching is the one in his brain stem. If it doesn't grow, he can wait until after graduation to begin treatments. That round will likely be longer than these, due to the location.

Pake has his books and computer and is ready to get to school. He's missing our family and friends back home.

For now, we are focused on our daily routine. Up early, drive across town and swear at the traffic.... return home, eat lunch and do homework. 

Leah, Stu, Silvan and Eliana have done a great job…

The Best Laid Plans.....

One of the things that I tend to resist is planning. While I appreciate organization and I know that making some plans is supportive, I prefer a more "freestyle" approach. It is a funny thing. We make appointments, work to stay on a schedule, have things going a certain way and then BOOM, life happens and things... change. This summer has been a continual affirmation that there is little that I know, even less that I am in control of and sometimes it is a total act in trust, faith and patience. It's been insanely FUN and challenging, all wrapped up together.

We were all set to head to radiation yesterday and got a call as we were on our way out. The "test run" for Pake's protocol didn't pass quality inspection. At 87% accuracy, they couldn't confirm that the radiation was going to go to the targeted area. This is his hearing and we are not willing to take chances or compromise his good auditory nerve. While it was an inconvenience, I also appreciated…

Here we go...

Happy to report that Pake completed the preliminary work for radiation today. The staff is very kind and his nurses are stellar. He walked in and out, with a smile on his face. Today's highligh was getting to choose the Pandora music, "2000 something Country" (I'll keep my opinion on that to myself :) 

He'll be here once a day, starting next week. It's going to be a long 6 week haul, but we all agree that it is better than surgery. He's had enough of that to last for a long, long time. 

I'm super proud of Pake's positive approach. Not one time has he felt sorry for himself or complained. What an inspiration he is! 





We want to thank everyone for the support, messages and encouragement! 

A Blank Page

It's crazy to ponder how my life has changed recently. I've fought long and hard to "become," to create a life that I wanted to fully participate in. When I sat down in January and penned my intentions for the year, I had no idea how things would shift and change. I had long-held dreams, desires, and hopes pulsating in my heart. I held on tight. Too tightly. I knew if I let go, things wouldn't be the same. 
I've learned you can't hold on to situations and people. I've known this but I had to re-learn it. We all have a choice of how we want to spend our days, how we want to live and be and what we want to experience and who we want to experience life with. We can put fourth a lot of effort, hoping things will go how we want, we can offer invitations and encouragement, but when it comes right down to it..... if we have to force something or someone to be in our lives, it's probably not meant to be, or at least not in the way we thought it was going t…

June Travels: Part 2

We spent two day at home this week. Long enough for Pryce to create a couple of new paintings. This is one that she sketched out at home. She'd envisioned the colors that she would use and since we were due to hit the road, she brought the supplies along. It's a good thing that she is a mobile artist. 


We drove to Omaha on Friday and had lunch with Leah. We packed the vehicle and away we went. 



Since it is REALLY hot, I am reminding myself how GOOD it feels, as compared with how much I froze this past winter. We made it to Columbia, MO around 1 am. 




There were grand plans of taking the kids to the Arch. Due to construction, we opted for the drive-by, snapped a few pictures and called it good. Most of the day was spent driving (THANK YOU, LEAH)! I read and did as much homework as my brain could handle. I ended up getting car sick (thought I was over that) but apparently not. 




Pryce and Leah listening to Mulan and Lilo and Stitch songs. (UGH! ) It is seriously NOT my style of music,…

Recap, Pack up and Reload

I'm home for the first time this week. It's been a whirlwind and I'm loving it, except for the graduate class and walking pneumonia. There's no time for me to be down so...... I have two days to realign.

Here's a quick recap:

*Left last Wednesday for an AWESOME Spa day and Lumineers Concert with muh bestie.
*Hopped a plane and headed for Seattle. Hopped on another plane bound for Walla Walla.
*Enjoyed a FANTASTIC, FUN time with the soon-to-be Mrs. Buyssee and her Bride Tribe.
*Took in Walla Walla Wineries.
*Enjoyed an extra two hours circling over Denver, waiting out a storm.
*Drove home. (Leah drove, I studied).
*Slept for 4 hours.
*Went to Urgent Care and got meds that didn't work.
*Drove to Valentine to swoop up Pake.
*Drove to Omaha.
*Spent all day Tuesday at UNMC. Literally the entire day, starting at 7:45am and walking out of the hospital at 4:45pm

*Will spend today getting unpacking, repacking, doing laundry, cleaning out a nasty fridge, spending as much time as poss…

June Travels: Part 1

I found this fun hat in January. I was missing summer and sunshine. I had the image of wearing a sundress and this fun hat. However, the reality is that I do not own a sundress and even if I did, I have a high suspicion no one would see it because I'm a chronic sweatshirt wearer, I just don't like being cold. The hat won though. It's my new travel accessory.



We took in the deliciousness that is the Melting Pot. Oh my, oh myyyyyyyyyy, SO GOOD!


My PIC, as Pryce refers to Leah (Partner in Crime!) After having her esophagus repaired a week ago, she was ready to dive in to some solid food! (She owned it like a BOSS!)
 (

After a spa day and amazing supper, what more could a girl want......?????

How about her favorite group, "The Lumineers" at Red Rocks. Oh and front row too, how does it get even better than that?



Walking in to the concert. What an amazing atmosphere! 

Best seats in the house!



Concert shirt, definitely happy to advertise for them!

This was an absolutely AMAZING …

Garage Band

I could actually have my own garage band now... there's enough room to park my car inside! VICTORY! Back in April, my best bud, Leah and the Soul Family joined us for a weekend clean-up project. This has been something I've wanted to do since last fall but the time just hadn't been right. Cold temperatures and a busy schedule weren't conducive for outside cleaning and clearing. This was the first of two weekends that I'll actually be home in April (and not at all in May, and very limited in June) so it needed to count...........and we did make it count.

We cleared out a pick-up load of items for dump, donation and selling:

Totes full of books no longer needed or read... off to the book seller.



There were numerous totes filled will holiday decorations that were also donated. I did go through each tote and salvaged a few "vintage" items I'd collected over the years. They are small and can fit into what I am keeping. I hadn't opened these in two year…